I mentioned in my last post that I recently got to know the mother of a suspected JDM child, 2 yr old Christopher from Jonesboro. Yesterday, Christopher saw Dr. Pachman in Chicago and he was then admitted to the hospital there and had a port placed this morning. She confirmed the diagnosis of JDM but believes he has some type of JDM overlap condition- a secondary autoimmune disease going on in addition to the JDM. He desperately needs to be begin treatment for the dermatomyositis as he's getting weaker daily, but they can't treat it until they confirm the other condition. The steroids would likely mask the other problem and alter test findings. Please pray that they will figure out what is going on with Christopher so he can begin treatment ASAP! Dr. P told them to expect to be there for 7-14 days so they have a long road ahead of them. Pray for his parents as well as I know they are so anxious and concerned for their little boy. My heart is just aching for them right now.
5 days ago